Pituitary Awareness and Rare Disease Day

Pituitary Infographic 300The Pituitary Network Association continues its efforts to promote awareness for people with pituitary and hormonal disorders. Taken separately some of these disorders are rare, like Cushing's and Acromegaly. The Pituitary Network Association recognizes that combining efforts for all pituitary disorders makes a larger group with a larger reach. In honor of Rare Disease Day, February 28, 2017, the PNA is dedicated to providing knowledge to help spread awareness for the undiagnosed or misdiagnosed. The PNA has created a Pituitary Infographic designed to educate people about the role of the pituitary gland and the symptoms associated with its dysfunction. Throughout the rest of the month the PNA will be sharing this infographic on social media and on our website. Share our posts or feel free to post the infographic to your own social media. Help us spread awareness!

Download your copy today! Pituitary_Infographic.pdf

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Scott Hamilton: An Update

Scott Hamilton 2Figure skating legend Scott Hamilton, a longtime friend of the PNA, has successfully battled testicular cancer and a craniopharyngioma, which has now recurred. He currently works for NBC, covering skating. He does a podcast for a web-based television network for figure skating. He does a lot of public speaking at corporate events. He owns a skating academy in Antioch, Tennessee and works with the Nashville Predators, an ice hockey team. He and his wife Tracie have four children, two birth children and two adopted from Haiti. PNA Editor Suzanne Potter recently spoke with Scott by telephone. This is a slightly condensed transcription of the interview, so you can hear Scott tell his own story.

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PNA Medical Corner: Pegvisomant in acromegaly: an upate

Annamaria ColaoThis month the PNA Medical Corner showcases an article co-written by Dr. Annamaria Colao, a longtime friend of the PNA. The study looks at Pegvisomant in the treatment of acromegaly and concludes that it is safe and effective but its use needs to be “optimized.” See the abstract below.

Pegvisomant in acromegaly: an update
Giustina A, Arnaldi G, Bogazzi F, Cannavò S, Colao A, De Marinis L, De Menis E, Degli Uberti E, Giorgino F, Grottoli S, Lania AG, Maffei P, Pivonello R, Ghigo E.
J Endocrinol Invest. 2017 Feb 7. doi: 10.1007/s40618-017-0614-1. [Epub ahead of print] Review.
J Endocrinol Invest. 2017 Feb 7. doi: 10.1007/s40618-017-0614-1. [Epub ahead of print]

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Tara Palmer-Tomkinson, British Celebrity and Pituitary Patient, Passed Away

TPTSeveral months ago Highlights ran an article about British TV host and socialiate Tara Palmer-Tomkinson, who announced last year that she had a prolactinoma. Sadly, she passed away recently at the age of 45. Her cause of death remains unclear at this point. She reportedly also struggled with autoimmune disease and had sought treatment for drug and alcohol addiction in the past. It is important to note that although prolactinomas can be life changing, they are rarely fatal. To read more Ms. Palmer-Tomkinson's untimely passing, click here for the BBC article or click here for the Daily Mail article. If you would like to learn more about prolactinomas and the symptoms of a pituitary tumors visit our website www.pituitary.org

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Former Highlights Columnist Jim Shelton Loses Battle with Cancer

Jim SheltonWe are very sad to report that Jim Shelton, a pituitary patient who wrote a regular column for Highlights from 2007-2012 passed away recently after a long battle with cancer. Jim’s health first started to decline in 1996, and over the years he was diagnosed with hypothyroidism, severe allergies, asthma and sleep apnea. In 2001 he was diagnosed with pituitary failure. In 2009 he found out he had celiac/gluten-intolerance, and finally, cancer, in the form of stage four melanoma. Through it all he remained remarkably upbeat, documenting his ups and downs on Facebook and in his column for the PNA.

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