PNA Enters 25th Year!
This coming year the Pituitary Network Association will turn 25 years old – and we’re still going strong!
The PNA was founded in 1992 in Newbury Park, California by Robert Knutzen, an acromegaly patient who was searching for answers after undergoing surgery two years prior for a tumor that doctors said had probably been growing for decades. When Bob found out that the average time from onset of symptoms to diagnosis for most pituitary tumors was ten years – he resolved to educate patients and doctors on the signs of pituitary disease.
In 1993 he published the first PNA monthly newsletter, called Network, which later became Highlights. Click here to read Network, Volume 1, Number 1. He consulted the experts and published the first edition of the Pituitary Patient Resource Guide in 1995, and additional editions in 1997, 2001, 2007, 2013 and 2014. The book is still selling well, with 114 PDFs and 64 hard copies sold in 2016 so far.
The PNA also published a second book in 2013, called Pituitary Disorders: Diagnosis and Management. That book is set to be published in China in 2018.
The PNA’s website, www.pituitary.org, has been a beacon of information to the world for many years. It gets 16,000 visits each week, with 42 thousand page views, and 82% of those are new visitors. So it is not a stretch to say that our website has helped millions around the world on their pituitary journey. The website gives patients valuable information and acts as a referral service for physicians and surgeons who specialize in pituitary issues. It is a channel of information exchange with patients and families and doctors.
The PNA regularly produces online seminars by experts in the field and still publishes this monthy newsletter, Highlights. Our staff attends medical and patient conferences around the country on a regular basis and has a booth at ENDO every year. We have sponsored many of our own conferences over the years, and have bestowed the PNA’s highest honor, the Gentle Giant Award, on physicians and surgeons whose work makes a considerable impact on patients and their communities.
The next project on the table at the PNA is a move to publish our medical brochures in six to ten languages, including Chinese, Arabic, English, Italian, South American Spanish, French, German, Russian and Dutch.
Our current brochure titles include Cushing’s, acromegaly, prolactinoma, adult growth hormone disorder, and hypopituitarism. We plan to add one on pediatric growth hormone soon.
In addition to the main website, the PNA maintains a message board, a PNA Facebook Page, a PNA Patient Support Group page and a PNA Family Support Group page. We also have a presence on Twitter and Instagram.
The PNA also offers a Continuing Education Units (CEU) program to help medical professionals recognized the symptoms of pituitary disease. Nurses, paramedics and EMTs can sign up for free CEU courses based on chapters in the Pituitary Patient Resource Guide.
Robert Knutzen stepped away from day to day operations about two years ago but remains as CEO. The PNA is now managed by Executive Director Jackie Hubbard, aided by a staff of six.
As you can see, the PNA is thriving, but we can only continue our good work with your generosity. To become a member click here. To donate to the PNA, click here. To shop for holiday gifts in our book store, go to www.pituitarybooks.com. We thank you for your support and wish you the happiest of holiday seasons!