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Pituitary Family Resource Center

When a family member is diagnosed with a pituitary disorder such as Acromegaly the family system will be affected. No one lives in isolation, the people in this persons life will need to make adjustments. In order for the family to remain intact and interconnected there are some steps each member can take to ensure that their relationship stays strong and positive.

One of the most important things a family member can do is to educate themselves about the disorder with which their loved on has been diagnosed. We all know some of the effects of paralysis, or cancer, but the pituitary creates a set of symptoms understood by very few. If a family member truly wants to help, they need to find a way to try to understand.

To better serve patients the PNA, along with guidance and generous support from a PNA Member has developed a place for families to get information to help them understand the daily struggles that pituitary patients face. While these struggles are not evident on the outside, what these patients go through is real and can be very debilitating.

PNA Webinar: Pituitary Disorders and The Family
Presented by Dr. Jamie Banker, PhD

 

Mental Health Resources

American Association of Marriage and Family Therapists
www.aamft.org

American Psychological Association
www.apa.org

Health Resources and Services Administration
www.hrsa.gov

Other Useful Resources

US Disability and Endocrine Disorders

 

Message to Pituitary Families

By Tammy Mazzella, PNA

The Pituitary Network Association has developed a Pituitary Family Resource Center to help the families of pituitary patients get answers to their questions and have a place to turn that does not put an added burden on the patient. In conjunction with our Family Resource Center I wrote this message for family members and friends of pituitary patients. Pituitary patients, feel free to share this letter with the people that care about you. It could help explain to them what you go through on a regular basis. 

Dear Pituitary Families and Friends,

For your sake and the sake of your loved one, we ask that you take a few minutes to read this article. You may think pituitary patients are difficult and tend to complain a lot, but please let us explain. One of the hardest things for pituitary patients is the fact that there are a lot of unknowns. There are multiple symptoms that may (or may not) occur. The symptoms may subside for a while, only to come back unexpectedly, much worse than before.

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The Impact of Pituitary Disease on The Family Caregiver and Overall Family Functioning

Michael A. Weitzner1
Robert Knutzen2

1H. Lee Moffitt Cancer Center and
2Pituitary Tumor Network Association,
Tampa, Fla., USA

Abstract

Chronic medical illness not only affects the patient but the entire family. The family system undergoes a tremendous change in focus during the acute illness, with members marshaling their resources to help the ill member. This inward focus is costly, producing profound stress. Often, family communication styles change to protect the family system and prior functioning. When the stress of caring for an ill member becomes chronic, as is seen in pituitary disease; the initially adaptive changes in family functioning may become problematic even in those families with previously healthy coping. Those families with previously less healthy functioning become even more dysfunctional. Each family identifies a caregiver for their ill member. This caregiver also experiences significant stress related to caregiving demands. Caregiver adaptation to the stress depends on how the stress is perceived, as well as the caregiver's coping patterns and availability of and satisfaction with social support. These elements comprise a stress process model of caregiving, which has been well-validated in dementia caregiving research. Although the majority of research has focused on dementia and cancer caregiving, identified issues have applicability to caregiving and family issues related to pituitary disease. This report will review:

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Available Now!

PPRG6-500 Cover
The Pituitary Patient Resource Guide Sixth Edition is now available! Be one of the first to have the most up-to-date information. The Pituitary Patient Resource Guide a one of a kind publication intended as an invaluable source of information not only for patients but also their families, physicians, and all health care providers. It contains information on symptoms, proper testing, how to get a diagnosis, and the treatment options that are available. It also includes Pituitary Network Association's patient resource listings for expert medical care.

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