In January the PNA Spotlight focuses on Norberto Andaluz, MD, MBA, FACS, a professor of neurosurgery and otolaryngology and Head and Neck Surgery. He is also director in the Division of Skull Base Surgery at the University of Cincinnati College of Medicine. Dr. Andaluz completed most of medical education and training in Argentina. He then completed two fellowships at the University of Cincinnati College of Medicine focused on general neurosurgery and cerebrovascular surgery. He then did an intensive mini-fellowship in endoscopic endonasal skull base neurosurgery in Italy. He was kind enough to answer some questions from the PNA; his answers follow.
This month the PNA Medical Corner features a study coauthored by Dr. Edward Laws, a neurosurgeon at Brigham and Women’s Hospital. He is also a longtime prominent member of the PNA and a contributing author of the Pituitary Patient Resource Guide, developed by the PNA. The study, published in the journal Frontiers in Oncology, proposes a classification system for cystic sellar lesions.
Purpose: A classification system for cystic sellar lesions does not exist. We propose a novel classification scheme for these lesions based on the heterogeneity of the cyst wall/contents and the presence of a solid component on imaging.
Today is an exciting day for the Cushing’s community: the US Food & Drug Administration (FDA) has granted regulatory approval for Recorlev® (levoketoconazole) [Press Release], a new therapy for the treatment of endogenous hypercortisolemia in adult patients with Cushing’s syndrome for whom surgery is not an option or has not been curative.
We know that patients with Cushing’s need a comprehensive support system throughout their treatment journey and are proud that the Xeris CareConnectionTM team will provide patients and caregivers with one-on-one support, financial assistance, and educational resources. Xeris CareConnection will also support healthcare professionals and their teams through access and reimbursement services. Recorlev will be available exclusively through our specialty pharmacy partner, PANTHERxSM Rare.
To get started with Recorlev, reach out to Xeris CareConnection (available Monday–Friday from 8 a.m. to 7 p.m. ET) at 1-844-444-RCLV (7258).
We would like to take this opportunity to thank the community for your support and partnership. We could not have introduced this important new therapy without the involvement of our clinical sites and physician partners, the support of our advocacy colleagues, and, most importantly, the engagement and enthusiasm of many patients throughout the process.
Pituitary Story: Surgery Delayed Years by COVID, Staffing Shortages
A Canadian woman, diagnosed with a prolactinoma two years ago, is still waiting for surgery, which has been delayed by COVID and by a shortage of workers in the medical field. Read more:
Researchers Study Biomarkers to Assess Invasiveness of Pituitary Tumors
A study in the journal Neuropsychiatric Disease and Treatment, done by researchers in China, find that certain biomarkers in the blood may shed light on the invasiveness of a pituitary tumor. In the future, this may help endocrinologists make an earlier diagnosis. Read more:
TV Series Features 22-Year-Old Pituitary Patient With The Body of a Child
A series on TLC debuting in January called “I am Shauna Rae” follows the life of a 22-year-old woman from Pittsburg, PA who is 3’10” and resembles an 8-year-old child. She battled cancer as an infant and chemotherapy caused her pituitary gland to go dormant. Read more:
Pituitary Patient Undergoes Transsphenoidal, then Transcranial Surgery
A story in the Times of India tells the story of a woman from Jaipur who underwent transcranial surgery to remove a recurring pituitary tumor. She had previously had transsphenoidal surgery to remove her first pituitary tumor. Read more:
Excessive Thirst Leads to Diagnosis of Pituitary Tumor
An article in the New Zealand Herald tells the story of an Australian mother of two who was diagnosed with a pituitary tumor after she developed an insatiable thirst. Read more:
Pituitary Story: Don’t Ignore the Symptoms
Paris Dancy’s latest columns in Cushing’s Disease News warn patients about the Cushing’s symptoms that he ignored prior to his diagnosis, and look forward to a healthier new year Read more here: and Here
Support the PNA while you shop! Amazon Smile and Goodshop make donations to non profit organizations based on purchases. Click on the images below for information on how you can select the PNA as your charity and earn money for the PNA on all your online purchases.
Disclaimer: PNA does not engage in the practice of medicine. It is not a medical authority, nor does it claim to have medical expertise. In all cases, PNA recommends that you consult your own physician regarding any course of treatment or medication.
Our mailing address is:
Pituitary Network Association
P.O. Box 1958
Thousand Oaks, CA 91358
(805) 499-9973 Phone - (805) 480-0633 Fax
You are receiving this Newsletter because you have shown interest in receiving information about our activities.
If you do not want to receive any more emails from PNA, Unsubscribe.
The Pituitary Patient Resource Guide Sixth Edition is now available! Be one of the first to have the most up-to-date information. The Pituitary Patient Resource Guide a one of a kind publication intended as an invaluable source of information not only for patients but also their families, physicians, and all health care providers. It contains information on symptoms, proper testing, how to get a diagnosis, and the treatment options that are available. It also includes Pituitary Network Association's patient resource listings for expert medical care.
If you are a nurse or medical professional, register for PNA CEU Membership and earn CEU credits to learn about the symptoms, diagnosis and treatment options for patients with pituitary disorders. Help PNA reduce the time it takes for patients to get an accurate diagnosis.