× Addison's disease occurs when the adrenal glands do not produce enough of the hormone cortisol and in some cases, the hormone aldosterone.

Addison's Disease

  • studentnurse2020
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Replied by studentnurse2020 on topic Questions regarding Addison's

Hello,
My name is Brad, I am a nursing student in California who graduates December 2020. Due to recent events a lot of our clinical experience has moved to virtual resources. I am posting here today to hopefully gain some knowledge regarding Addison's. I will post some questions that would be helpful and if you have the time to respond to even just one of my questions that would really help me out. 
How were you first diagnosed?
How do you cope with the disease?
How are your family members affected?
What challenges has the disorder presented in your life?
What medications are available to you and what medications do you take or what meds work for you?
If you could express one thing to a new or student nurse caring for you and your disease what is one thing you would want them to know or understand? 

Thank you so much for your time. 
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5 months 2 weeks ago #10864

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  • slr38
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Replied by slr38 on topic Addison's Disease

Thank you for your post!  I am glad that you got the answers to your medical issues.  It is just so frustrating to get someone to listen.  
I had my appointment yesterday with the Nurse Practitioner.  She put in a referral for me to see an Endocrinologist and also another doctor, not a specialist but someone she feels thinks out of the box a bit more and may be able to figure out what is wrong with me.  I have a requisition for more bloodwork (All of the Thyroid tests, Cortisol, K, Na, Iron, etc).  I will keep trying!  
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1 year 3 weeks ago #10727

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Replied by khah1994 on topic Addison's Disease

Thank you Tammy for all of the information!! I just sent a request to the Facebook page. I am so glad my daughter did her research and I think she will be a great nurse. I told her she should be a Dr. since she helped with my diagnosis. 
1 year 4 weeks ago #10725

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Replied by pnaadmin on topic Addison's Disease

Hello khah1994,

We are glad you found this forum too :)

We know our bodies better than anyone else and it is always good advice to listen to our bodies. I am glad your daughter suggested getting your cortisol levels checked, she will make a great nurse. 

In addition to this forum we also have a group on Facebook called Pituitary Network Support Group (I have included a link below). It is a closed group so the posts can only be seen by members of the group. If you are interested you will need to request to join. One of us will approve you as soon as we can. 

https://www.facebook.com/groups/PituitaryNetworkSupportGroup

Also if you are looking for more information about Addison's we have a page on our website that goes into detail about Addison's and Adrenal Insufficiency.

https://pituitary.org/knowledge-base/disorders/adrenal-insuffieciency-addison-s-disease

Feel free to contact us if you have questions or would like additional information. 

Take care,

Tammy Mazzella
Pituitary Network Association 
[email protected]
(805) 499-9973
1 year 4 weeks ago #10724

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Replied by khah1994 on topic Addison's Disease

I am so very happy I stumbled upon this forum. This has been such a long and frustrating journey. There is nothing worse than knowing there is something very wrong but no one will listen. I haven't felt well for a long time and I thought well I am just getting older. I started having dizzy spells and then eventually started passing out.
After passing out in the shower and hurting my back my husband finally talked me into going to the ER. The ER Dr.'s were wonderful but they couldn't figure out what was wrong. I was in the hospital for 2 days and had so many tests ran. Everything was coming up normal. The hospital Dr. came in and told me they thought I needed to see a  psychiatrist. I was so frustrated because I knew there was something VERY wrong.
My daughter who is a nursing student told me to have them run a Cortisol level. My response was Ashley get off of Web MD. LOL. I asked the Dr. to please check my coritsol level. The next thing I know they told me I was being transferred to a different hospital with no explanation. I was taken by ambulance to the other hospital and within 24 hours they knew what was wrong (Addison's Disease). I am convinced if I would have stayed at the first hospital I might not have survived. Please listen to your body and keep trying!!!
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1 year 4 weeks ago #10723

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Replied by slr38 on topic Questions regarding Addison's

Thank you, that makes sense.  I will ask to go directly to an Endocrinologist.
1 year 4 weeks ago #10721

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