× Addison's disease occurs when the adrenal glands do not produce enough of the hormone cortisol and in some cases, the hormone aldosterone.

Questions regarding Addison's

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Replied by pnaadmin on topic Questions regarding Addison's

Finding an open minded doctor is always helpful. Make sure that they do the right testing. For example, did they do full thyroid testing or just TSH? On the Get Answers link there is an article about questions to ask your doctor. That article also lists recommended tests. You can always review that with your PA. Good luck and keep us posted.

Take care,
Tammy
Last edit: 4 days 22 hours ago by pnaadmin.
4 days 22 hours ago #10714

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Replied by slr38 on topic Questions regarding Addison's

Hi, thanks for replying.  I did have my Thyroid levels checked and they were fine.   I have an appointment with the Nurse Practionner in 1.5 weeks ( I prefer seeing her over the doctor) so we will see how it goes!
4 days 22 hours ago #10713

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Replied by slr38 on topic Questions regarding Addison's

Hi Tammy,  Thank you for your very informative response.  I have doctor's appointment in 1.5 weeks (with the Nurse Practitioner, I find her a lot more open minded!).    
4 days 22 hours ago #10712

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Replied by carolk on topic Questions regarding Addison's

Hi There,  I agree with Tammy... a pituitary specialist will be able to do the proper testing and have the expertise to make a diagnosis. Has any of the doctors checked your thyroid levels? Just wondering if they've ruled that out? Hoping you get answers...
5 days 1 hour ago #10711

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Replied by pnaadmin on topic Questions regarding Addison's

Hello,

I am not a medical professional so I cannot tell you what is going on based on your symptoms. You should mention it to your doctor, it may be a good way for you to get a referral to an endocrinologist. Family doctors do not generally have the training necessary to figure out complex hormone issues.  I recommend finding an endocrinologist that has experience treating pituitary/adrenal disorders. Especially if you are concerned about Addison's. Most endocrinologists focus on Diabetes and Metabolism, and do not have experience with pituitary/adrenal hormones either so make sure that you find someone who has the necessary training to help you get the answers you deserve. 

Here is a link to a list of pituitary specialists:

https://pituitary.org/medical-resources/physicians

In the course of finding answers I recommend that you keep track of your symptoms, this can help you and your doctors figure out what is going on. I also recommend educating yourself about your symptoms and write down questions so you remember to ask them when you get to the doctors office.

This page may be helpful for that:

https://pituitary.org/table/get-answers/

Finding the right doctor who will listen and respect your right to be part of your health care team is very important. Your quality of life depends on it. A doctor that doesn't want you using Google or trying to help better your health may not be the right doctor for you. You may have to fight for the right care but there are doctors who can help, you just have to find the right one. 

I hope this information is helpful. There is also a great deal of information on our website that may help you get a little closer to some answers. Feel free to contact us if you have any questions.

Thank you,

Tammy Mazzella
Pituitary Network Association
[email protected]
(805) 499-9973
5 days 2 hours ago #10710

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Questions regarding Addison's was created by slr38

Hello,

I am a 48 year old female who has been looking for answers for years.  I have been struggling with fatigue and muscle/joint pain for over 25 years.  I have been to several doctors and have been tested for many things.  Recently when I mentioned my fatigue getting worse to my family doctor she dismissed it and said "oh course you are tired, you are a mother".  My blood tests always come back normal including sodium and potassium.  I often have stomach aches and have every imaginable test for that but nothing ever comes up.  I have alopecia areata and the dermatologist has never looked into why I have it.   I am often dizzy when I stand up.   It seems that  doctors look at all of my symptoms individually and never as a whole.

I recently came across a website about Addison's and noticed that I have many of the symptoms.  I looked at my past blood tests and see that my cortisol levels were once tested in 2013 at 9:50am.  It was 236 nmol/L.  I am not sure if this is a normal level or not.   Considering my potassium and sodium levels have always been in the normal range (last blood test was a year ago) I was wondering if it was worth mentioning to my doctor.  I know they are not fond of Google self-diagnosis!

Any advice or insight would be greatly appreciated.  Thank you in advance!
5 days 2 hours ago #10709

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