× Cushing's Syndrome is a debilitating endocrine disorder characterized by excessive cortisol levels in the blood which may be the result of a tumor of the pituitary gland, adrenal glands or from tumors or cancer arising elsewhere in the body

refused diagnostic test

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Replied by sarbear1994 on topic refused diagnostic test

Thank you Tammy, I have followed your link and found an endocrinologist nearby who I can hopefully get an appointment with soon. The physician I saw was primary care.
3 years 11 months ago #10398

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Replied by PNA-Tammy on topic refused diagnostic test


I am glad you were able to find out site and reach out to us. I am not a medical professional so I cannot directly answer your medical questions. However, I do think that your symptoms definitely warrant more testing.

Are you seeing an endocrinologist or just a primary care physician? I recommend seeing an endocrinologist, if you already are, you may want to get the opinion of another endocrinologist. An endocrinologist with pituitary experience would be your best choice, not all endos have the necessary experience to properly treat people with pituitary disorders.

Our website has a list of specialists throughout the US and some international ones as well. Here is a link to a list of pituitary specialists.


If you have any problems with the link you can copy and paste the URL into your browser.

Finding a doctor that will listen and do more testing to get you some answers is imperative. Check out some of the information on our website. We just did a webinar yesterday about Delays in Diagnosis of Pituitary Tumors: Why They Happen and Steps to Prevent Them, it is an excellent presentation and has a lot of good information. There is a video of the webinar available on our homepage at www.pituitary.org.

I hope this information is helpful to you. Feel free to reach out to us here on the Forum or by phone at (805) 499-9973 or via email at tammy@pituitary.org. I truly hope you are able to get some answers soon.

Take care,
Tammy Mazzella
Pituitary Network Association
3 years 11 months ago #10397

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refused diagnostic test was created by sarbear1994

I am 23 years old and gained 65 lbs in 4 months. The weight gain seems to come in spurts, and thankfully has come to a plateau over the last month or two, however even with extreme reduction in caloric intake I cannot get rid of any of the weight. It is all in my central region, I have striae on my abdomen, thighs, breasts, and upper arms. My breasts have gained at least two cup sizes and are tremendously sore. My back and hips hurt badly as well, and I had to stop yoga which I did daily because my shape and pain is so different that certain poses I did everyday I just cannot get into because of muscle spasms and proximal muscle weakness, and it feels like that happened over night. My emotional stability is completely off, I feel like a different person entirely. My peripheral vision is getting worse with time, and inability to focus my eyes has been a problem since the symptoms first began. I am always thirsty, and always peeing, can never fall asleep at night and if I do I am awakened by the urge to pee 4-5 times a night. I am so tired throughout the day, but come night time even though I want to sleep I just can't. My diet consists of fish (mainly salmon- sometimes tuna), veggies, rice, and at my worst I will eat potatoes. I do not eat muffins, cookies, sugar, etc. I don't even eat fruit because I have always been healthy and fit and avoided high sugar intake! I am bruising horribly and easily (never know where they come from) and have complete lack of libido. In highschool I had periods where I was overweight, but NEVER obese, and corrected myself when I noticed an increase in my weight. When I would gain weight prior, it was also always gradual and evenly distributed...I am now obese, my BMI increased by 10 in a 4 month period, and my caloric intake no matter how low does not seem to help me shed any of this weight- and my wedding rings still fit!! Sometimes they feel big.. it's very strange. My face is oily with acne, and I think the worst part of all of this is the mental and emotional symptoms, I saw a doctor who initially had mentioned cushings to me, however after a single cortisol blood draw he now wants to put me on metformin and do more cortisol tests in a few months (even though my hemoglobin A1c is normal, only fasting glucose is elevated). I did my research and informed him I don't think we did the cortisol test right, as 24 hour urine or suppressing blood test is the more recommended diagnostic path, and even though he admitted my single draw was elevated for the time it was taken (12pm), he seemed confused at my suggestion of a 24 hour cortisol test. I have elevated BP, cholesterol, and fasting blood glucose, to which he blames diet. I have attached pictures of myself all from the current year, 2017. Any help/advice would be greatly appreciated. These symptoms are becoming increasingly debilitating emotionally and physically. The last picture in the unlabeled set is from 12-12-17.
Last edit: 3 years 11 months ago by sarbear1994.
3 years 11 months ago #10396

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