× Hypogonadism can occur for a number of reasons. Certain men have hypogonadism since birth while others may develop this condition later in life. The two types of hypogonadism are Primary Hypogonadism & Hypogonadotropic Hypogonadism.

Female hypogonadotrophic hypogonadism

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Replied by PNA-Tammy on topic Female hypogonadotrophic hypogonadism

Hello Georgie93,

I am so sorry to hear about the troubles you have had and I hope that you do not decide that life is not worth living. There is help available and there may be ways to improve your quality of life.

Are you being treated by an endocrinologist? I am not a medical professional so I cannot suggest any medical type of remedies, but I can recommend that you find an endocrinologist that specializes in treating pituitary/hypothalamic disorders. We have a list of pituitary specialists on our website, look for a specialist in your area and they may be able to help you develop a treatment plan to alleviate some of your symptoms. Get second opinions or third or more if that is what you need, but do not give up.

Here is a link to a list of pituitary specialists, if you cannot find one in your area contact, look for someone that is close and they may be able to refer you to someone more local.


Clinical trials might also be worth looking into. You may be able to find something on the clinicaltrials.gov website that may be helpful.

I also would like to give you a couple of links to some mental health resources. These may be beneficial for those times when you get sad and desperate. You are important and finding the right treatment is essential, medical treatment sometimes needs to be bolstered by mental health treatment.



suicidepreventionlifeline.org/ 1-800-273-8255

As I mentioned we do not have the medical training necessary to give you medical advice but we are here to support you. If you have any questions or if we can help at all feel free to reach out to us at (805) 499-9973 or via email at [email protected]

Please take care and realize that you have a lot to live for. You may not have found the right treatment yet, but don't give up on yourself, keep fighting for the quality of life you deserve.

Kindest regards,
Tammy Mazzella
Pituitary Network Association
2 years 7 months ago #10403

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Female hypogonadotrophic hypogonadism was created by Georgie93

To cut a long story short, after suffering with anorexia, bulimba and excessive exercise throughout my teens, and despite reaching a healthy weight at age nineteen, it was not enough to prevent hypothalamic ammenorhea, and hypogonadotrophic hypogonadism.
The diagnosis came about in 2015 at age 22, when I had been suffering severe hairloss the previous year, and I weight loss, menopause-type symptoms and still no period. I had an array of tests - bloods, uterus ultrasounds, MRI’s, and it was concluded.
Since then my gyn has had me on hormone replacement - Diane35, but my
Hairloss turned out to be androgenetic alopecia (female pattern hairloss - permanent), and sadly despite the pill, estrogen replacement and certain antiandrogen treatments, it continues to get worse. Recently I had blood works done to check my male hormones, and these are now also low. I have recently started taking Dutasteride 0.5mg daily (only for the past 2.5weeks), with the hope that the elevated test & estrogen it causes plus androgen blockers will help arrest me hairloss.
It seemed my condition never improved even with weight gain and exercise reduction. I DID get a period back at the start of 2015, but it was anovulatory. I feel like the years of damage I did in my
Teens may just be permenant.

My question is to any other women with the same condition caused by similar issues: How have you treated your condition? Have you experienced hairloss, and how have you treated it?

I’m really sad and desperate about it.
Honestly I consider just ending my life all the time.

Any support of helpful input would be much appreciated.
2 years 7 months ago #10402

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