× Hypopituitarism is a general term that refers to any under function of the pituitary gland. This is a clinical definition used by endocrinologists and is interpreted to mean that one or more functions of the pituitary are deficient.

Does anyone here have Sheehans Syndrome

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Replied by almontcd on topic Does anyone here have Sheehans Syndrome

Raised hand here.... Sheehans incident/injury 14 years ago in 2002. Slow onset, but felt onset immediately. just worse.... feel like walking death.
2 years 3 months ago #10323

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Replied by PNA-Tammy on topic Does anyone here have Sheehans Syndrome

I recommend finding an endocrinologist that specializes in treating people with pituitary disorders. Many endocrinologists focus on diabetes and are not familiar enough with pituitary function. Get a second or third opinion. Keep looking for answers and treatment.

Here is a link to a list of pituitary specialists on our website:

http://pituitary.org/medical-resources/physicians
3 years 8 months ago #10170

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Replied by mahala on topic Does anyone here have Sheehans Syndrome

I do know that high levels of cholesterol and triglycerides do go along with pituitary problems. The first Endocrinologist I
went to said I was fine, that my levels were in the low normal range. My blood pressure and heart rate stayed critically low for years before I found the right Endocrinologist. My symptoms all started after a severe auto accident where I suffered Traumatic Brain Injury but didn't truly manifest until .I had my second child at the age of 40, 5 yrs after the wreck. Definitely find you an Endocrinologist who looks at the whole picture. I am not sure whether mine is Sheehans Syndrome, no one has given me the exact diagnosis. I have heard my Endo say Adrenal Insufficiency and one Neurologist say Sheehans
Mahala
3 years 8 months ago #10169

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Replied by Elle on topic Does anyone here have Sheehans Syndrome

I believe this may be part of my problem. I had hemorrhaged after the birth of my daughter 24 years ago. I had a miscarriage in December that aside from the quick loss of blood, I also passed a flat, oblong shaped "clot" that fit in the palm of my hand. I have not had a cycle since. I have been to several doctors, none have put the low prolactin, low estrogen, along with no menstrual cycle and numerous other pituitary hormone levels being almost low or off including TSH 0.641, T4 6.1, T3 Uptake 24, Thyroxine Index 1.5 prolactin 1.1 . The thyroid numbers are not off as they are low norm. I just want answers and the doctors where I live don't look at the whole picture . Rather isolated things, like my high cholesterol. I don't get it. I requested an endocrinologist referral, so far no luck. Thank you for listening to me babble.
3 years 9 months ago #10162

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Replied by Roger W. on topic Does anyone here have Sheehans Syndrome

Hello. I can pretty much swear I do. I have come to the conclusion that I do but I don't have a diagnosis. It is one of the reasons I just registered for this forum. To learn about this from others. The only problem I have so far is that I AM MALE. All the reading I have done under "pituitary atrophy" leads me to conclude that a severe blood loss over 20 years ago lead to a very - very slow onset of symptoms. The problem I have is that the studies and research for Sheehan's Syndrome have all been done on severe blood loss on women at childbirth. It seems nobody has bothered to do studies on things like severe blood loss on gun-shot victims (not my case) - which seems a valid group of victims who might suffer a severe blood loss.. in short. by the time I finally was convinced that I should go to the emergency room - I was already close to death. They told me that I should be in a coma or dead. I had about 4 units of blood - hematocrits - and should have had 16. They gave me 5 - I lost 1 - kept 4 - and they told me to go home and build the other 8 over time. They were afraid of the transmission of unknown diseases in those years - a potentially scare blood supply. I may not be able to answer any of your questions. I definitely have hypo-pituitarism (sp?) I have had 3 MRIs since 2003.. and been searching for a logical reason for my symptoms and only when the radiologist finally diagnosed the atrophy - which is a progression since the MRI of 2003 and 2009.. was I able to find Sheehan syndrome and see that the very slow progression and symptoms matched mine perfectly. I am looking for help - for any research for this disease occurring in males. And if I can help you, fire away.. Thank you for the post.. :)
4 years 5 months ago #10113

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Does anyone here have Sheehans Syndrome was created by [email protected]

We learned 2 weeks ago that my wife has sheehan syndrome + diabete insipidus. Any reference to support group and info that would help and give some hope would be so much appreciated
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<br>tx
6 years 10 months ago #9909

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