× These pituitary tumors (also called adenomas) secrete excessive amounts of prolactin and are the most common type of pituitary tumor seen clinically.

Pituitary tumour questions

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Replied by pnaadmin on topic Pituitary tumour questions

Hello and welcome to the PNA forum. I am not a medical professional nor do I take Cabergoline so I cannot directly answer your questions. I did however reach out to one of our scientific advisers and I received the following response.

High prolactin levels can cause infertility. If this is the only cause, normalizing prolactin will increase signficantly the couple's chances to conceive.
How long before the medication starts to work? It depends on how effective the medication is (each patient is different). The response may occur after a month or two. Other times, the dose should be adjusted and it takes longer.
Does cabergoline make anyone else feel tired, headachey and a little down? Cabergoline can cause side effects, including those mentioned.
Will I have to be on medication forever? The decision of taking the medication after the delivery is dependent on several factors: size of the tumor on repeated MRI, menstrual cycles, breast symptoms, etc.
What happens if the medication doesn't work? A referral to an endocrinologist with expertise in the field.

I agree with the last answer about finding an endocrinologist with expertise in the field. No all endocrinologists have the necessary training or experience to optimally treat people with pituitary tumors. We do have a list of pituitary specialists on our website. I know you mentioned that you live in a remote area, so some travel may be required to see someone that has the experience you need. A pituitary center where there is a multidisciplinary team is your best option, but at the very minimum a pituitary endocrinologist is recommended.

Here is a link to our list of pituitary specialists:

pituitary.org/medical-resources/physicians

Here is a link to our list of pituitary centers:

pituitary.org/medical-resources/hospitals

We also have a support group on Facebook. It is a closed group so you will have to request to join. We keep it closed for privacy purposes so that people can post information that can only be seen by the group.

The link for the support group is:

www.facebook.com/groups/PituitaryNetworkSupportGroup

I hope this information is helpful. Feel free to reach out to us with additional questions or for more information. We can be reached at (805) 499-9973 or you can reach me via email at [email protected]

Take care,

Tammy Mazzella
Pituitary Network Association
Last edit: 1 year 7 months ago by pnaadmin.
1 year 7 months ago #10383

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  • sarahw.BC
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Pituitary tumour questions was created by sarahw.BC

I am a 28 year old, fit, extremely healthy female.I found out about a month ago that I had a 7mm tumour pushing on my pituitary gland. I live in a remote area in northern BC where regular GP doctors are even hard to come by, forget specialists, I am extremely frustrated and heartbroken after unsuccesfully trying to get pregnant for over 2 years. Finally I received an answer as to why; a tumour. I am on .25 Cabergoline twice a week. My GP doctor seems to be able to answer my questions. And reading some of these posts have made me panic a little for whats to come. How long before the medication starts to work? Will I be able to get pregnant soon? Does cabergoline make anyone else feel tired, headachey and a little down? Will I have to be on medication forever? What happens if the medication doesn't work? ANY info, comments at all would be SO SO SO much appreciated. Thanks
1 year 7 months ago #10381

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