× These pituitary tumors (also called adenomas) secrete excessive amounts of prolactin and are the most common type of pituitary tumor seen clinically.

Prolactinoma, cabergoline and TRT

  • Posts 46
  • Thank you received: 4

Replied by carolk on topic Prolactinoma, cabergoline and TRT

Hi There,

You are very fortunate that your prolactinoma was diagnosed and you got the proper treatment! I am not a medical professional, but I know when you take TRT it stops the body's T production. I would suggest that you research the subject and write down your questions and bring them to your endo visit. Have this discussion with your endo, bringing up any opposition to the endos recommendations. Continue the discussion until you have the information you need to make your decision. If you choose to be weaned from the TRT and you begin experiencing low T symptoms, make sure you keep a journal of them with dates and times and bring your journal with you to your appt so the endo understands what's really going on. Communication with your endo is key so you receive proper dosing recommendations. Knowledge gives you the power to make the decision! Also, 2nd opinions never hurt. Here is the link to PNA's list of known pituitary specialists:  pituitary.org/medical-resources/physicians  Also here is a list of PNA's list of known hospitals with pituitary centers and programs:  pituitary.org/medical-resources/hospitals . Best wishes on your journey!
1 year 9 months ago #10852

Please Log in or Create an account to join the conversation.

  • Posts 1
  • Thank you received: 0

Prolactinoma, cabergoline and TRT was created by Oneday

Hi Folks - first time poster here. About a year ago I was diagnosed with 9mm prolactinoma. I had started TRT due to symptoms and blood test showing low T level (<200). As part of the test done at one of the national testosterone centers that so many docs love to hate on, they identified an elevated prolactin level (147).  Saw an endo, got an MRI, put on cabergoline etc...same story as many of you. My prolactin levels have fallen (about 17 currently) and the meds seem to be working. My concern is this - the endo wants me off of the TRT. I can say that without a doubt, the TRT has made a huge (not an understatement) difference in my quality of life as well as that of my family. I have far more energy, a much clearer mind, more emotional and mental capacity and am frankly a much nicer person to be around (less moody, less agitated etc.). I did stop the TRT for 4 months after being on it for about 3 months and my T levels never rose - in fact they actually fell a little bit over that period of time. The prevailing thought from my endo seems to be that it takes more time. However, there are no guarantees normal levels will ever come back. On the other hand, TRT has/is making a my life much better. I realize there are potential risks associated with it, but anything comes with a certain amount of risk and as someone that exercises 6 days week, lives an active lifestyle, eats well, is not over weight, etc. etc., I feel like the risks are something I can live with given the trade off. In a perfect scenario, I would of course not be on any meds, TRT, etc., but not sure that's a real possibility. Overall, I feel like there is a lot of hate directed at the T clinics, but in my case, they not only identified my prolactinoma, but have also helped me feel a ton better. Has anyone here had success with T levels coming back up to normal as prolactin levels went down? If so, how long did it take? Anyone else make the choice to remain on TRT? Just curious as to others stories. Thank you all!
1 year 9 months ago #10851

Please Log in or Create an account to join the conversation.

Moderators: membership@pituitary.orgmembershipcoordinatoradministration