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Pituitary Cyst

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Replied by carolk on topic Pituitary Cyst

I agree with everything Tammy stated. I am not a medical professional, but the pituitary secretes several different hormones that should all be tested given that you have a cyst on or near that region. Educate yourself and trust your instincts. Most patients know that something is going on, with the cyst it is quite possible that it is affecting the normal pituitary hormone secretion. It might be causing the deficiencies in some and oversecretion in others. It is complex, and you need a specialist who knows what testing needs to be done, and what treatment if any you will need. If they decide to do the surgery, make sure the neurosurgeon specializes in pituitary medicine. Just like endocrinologists, not all neurosurgeons are experienced in pituitary surgery. PNA'S has a list of known specialists on their site.  
1 month 4 weeks ago #10755

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Replied by pnaadmin on topic Pituitary Cyst

Hello,

I recommend getting a second opinion from a doctor that specializes in treating people with pituitary disorders. You are having symptoms that need to be addressed. At the very least go to an endocrinologist and get all your pituitary hormones tested, as you indicate you already have a couple of them that are low. Is your doctor addressing that? Has he/she given you any replacement hormones?

If at all possible try to get to a pituitary center or find an endocrinologist that specializes in pituitary medicine. Not all endocrinologists have the training and experience needed to successfully treat someone with a pituitary disorder.

Here is a link to a list of pituitary specialists:

https://pituitary.org/medical-resources/physicians

Here is a link to a list of pituitary centers:

https://pituitary.org/medical-resources/hospitals

We have a great deal of information about pituitary disorders on our website. You can find information about the different types of tumors and the symptoms associated with them. There are also articles about questions to ask, testing to ask for and how to find the right doctor. Here are some other links that may be useful.

This page has general pituitary information and there are links to pages about each of the different types of pituitary disorders.

https://pituitary.org/knowledge-base/disorders

This page has several articles on it, including questions to ask and finding a doctor. 

https://pituitary.org/table/get-answers/

I hope this information is helpful. I know it is a lot to take in but by educating yourself you will be better equipped to find the right care. Feel free to contact us if you have any questions or would like additional information.

Take care,
Tammy Mazzella
Pituitary Network Association
(805) 499-9973
2 months 1 week ago #10747

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Pituitary Cyst was created by js12345

I am a female, age 45, and have a pituitary cyst, that my Dr is not concerned about.  However, I have to wonder if it is the cause of my weight gain & hormonal issues - gained 50+ lbs in the past year, without eating that much; progesterone zero, testosterone high, total cholesterol , non-HDL, & LDL high.  Do cysts cause problems and warrant surgery?  Should I try to find a different doctor?
2 months 1 week ago #10745

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