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Hello! New here, New to adenoma too.. (Did you have this symptom?)

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Replied by carolk on topic Hello! New here, New to adenoma too.. (Did you have this symptom?)

Hi There,

I am not a medical professional, but some of the symptoms you mentioned dizziness and sight issues are typical of a pituitary adenoma. Since you have confirmation that you have one via MRI, the next step will be to confirm if the adenoma is hypersecreting excessive hormones or if the adenoma has caused your pituitary to stop producing one or more hormones. You didn't say if they suspect excessive hormone production or a deficiency. If they suspect hypercortisolism or Cushing's it is probably the hardest pituitary disorder to diagnose because there isn't one definitive test. They usually start with blood tests and if they are abnormal move on to the 24 Urine Free Cortisol and an ACTH stim test among others. Once you receive a diagnosis of Cushing's disease, the first line of treatment is usually surgery. With a microadenoma, your chances of success are much better. If they suspect a cortisol deficiency and that is confirmed they would give you replacement corticosteroids such as hydrocortisone. If your tests come back normal they would be looking at your other pituitary hormone levels to see if any are abnormal and test treat accordingly. One of the most important aspects of a pituitary disorder is that you are treated by experts in pituitary medicine. I can't stress how important it is. Not all endocrinologists are the same, most treat the more common endocrine disorders such as diabetes. If you do need surgery, be sure that your neurosurgeon has done many pituitary surgeries. Treat it like a job interview, asking them how many pituitary procedures they have done. If it's not very many, I would suggest that you look for another neurosurgeon.  An experienced pituitary neurosurgeon will know how to preserve as much of the pituitary as possible. The pituitary is the master gland of the body, so keeping as much of it functioning as possible is so important to your quality of life. See below for links to PNA's lists of known pituitary specialists:
https://pituitary.org/medical-resources/physicians

If your physician is within a pituitary center, that would be ideal. Pituitary centers have a multidisciplinary team of physicians that will all work together to come up with the best treatment plan for you.  See below for PNA's list of pituitary centers:

  https://pituitary.org/medical-resources/hospitals

Best wishes on your journey!

8 months 3 weeks ago #10796

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Hello! New here, New to adenoma too.. (Did you have this symptom?) was created by VisionaryDude1

Hi everyone, just found out that I got a 6.1x5mm pituitary gland adenoma. Next week is ACTH and cortisol test.
Can anyone tell me if 24/7 dizziness is a symptom? I am like that for 2 years plus 24/7 ear ringing AND eye issues (slight double vision, dry, light sensitive). The thing is the adenoma is small (I think) to affect my eyes and ears and a brain MRI didn't show anything else.
What is usually done after the ACTH test? (in yes or no case)
8 months 3 weeks ago #10795

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