× Have you had to leave your job or just had problems coping with your regular responsibilities. How has having a pituitary tumor/disorder affected your work?

Losing Cognitive Abilities – Pituitary?

  • Posts 2
  • Thank you received: 0

Replied by Ember on topic Losing Cognitive Abilities – Pituitary?

First, as old as this is, I hope you've found some help and things have improved!

I was recently diagnosed with a 2mm prolactinoma. And for years I've dealt with my job performance slipping and struggling with being able to focus and just fatigued and brain fog. And everyone brushed it off as I was depressed, or it was an excuse. I was almost relieved to find out I had a tumor because it meant I wan't crazy.
1 year 8 months ago #10336

Please Log in or Create an account to join the conversation.

  • JeffJamesDean
  • JeffJamesDean's Avatar Topic Author
  • Offline
  • Fresh Boarder
  • Fresh Boarder
  • Posts 6
  • Thank you received: 0

Replied by JeffJamesDean on topic Losing Cognitive Abilities – Pituitary?

Thank your for sharing. I am really struggling.
3 years 9 months ago #10128

Please Log in or Create an account to join the conversation.

  • Posts 1
  • Thank you received: 0

Replied by inmyhead on topic Losing Cognitive Abilities – Pituitary?

I just found this site and this original post is a bit old, but I can relate. Laid off Nov 2013, just couldn't get my act together, couldn't learn, anxiety through the roof, and doctors telling me I'm just depressed, to go to therapy.

I have to wait a couple months before an opening is available at an endocrinologist (who will probably just blow me off like every other doctor on the planet...) I just want to put out there that if you have high GHG, from what I read, everything is jacked.

I resorted to buying bloodwork online, going into labs for the draw, and paying out the nose (for being unemployed) for a cortisol/DHEA test and a candida antibody test.

My road into this has been through a wasted immune system.

According to our awesome "evidence-based" modern medicine, "adrenal fatigue" is a scam.
<<< yet I have a salivary test saying my cortisol and DHEA are very, very low, and a urine test saying cortisol is very very low...>>

Modern Medicine - "doesn't matter, there is no such thing as adrenal fatigue."

Me: well maybe the systemic, invasive yeast infection is finally taxed, after the 8 years I have been complaining about yeast and it's toxic byproducts.....

Modern Medicine - "systemic yeast infections only happen to AIDS patients, those with catheters, or immuno-compromised chemotherapy patients."

Me: But my immune system IS compromised, because I don't have much cortisol....

Modern Medicine - "There is no such thing as adrenal fatigue."

Talk about chasing unicorns... I've begged for IGF1 and Prolactin tests, just squeeze 2 tests in please. The doctor ordered GH and Prolactin. (huh?! doesn't every doctor know GH is unreliable?) So Prolactin is high, and GH "low" supposedly, and she washed her hands of me. I had dropped the A*bomb a couple times - Acromegaly. Dismissed.

New doctor is on a "leaky gut" kick and that's fine, ***as long as he keeps looking***. He renewed my anti-fungal (one week off and the fog descends, the racy anxious rambling emotional roller coaster starts...) He tested for H.Pylori and Epstein-Barr, both positive.
(hello, immuno-compromised......)
Immunoglobbins M is through the roof, swollen lymph nodes in the back of my neck have spread to under jaw. I order anti fungal shampoo from EBAY of all places, from France, and still losing that war.

I have frontal bossing, jaw protrusion and squared off - I'm a woman that looks more and more like a neanderthal as I wait for this endocrinologist appointment. I can hear a subtle shock in my brother's voice every time he sees a picture of me - he doesn't recognise me. Doesn't keep him from telling me I'm lazy and just need to get off my butt and exercise. Even when I tell him that would require exactly 2.5 days of sleep to recover from...

March 18. So I wait. I have man hands, up a size in shoes, lobid-NO, and don't even have energy to be interested in the things that used to interest me. Can't convince a doctor to test hormones. Like, let's do some "front work" for the endo so they don't have to bother testing when I get in. If I don't have crazy hormones, then great, let's keep trying my gut! "Normal" is as much information as "Abnormal" and they forget that!

So from one crazy to another - hi! :)

(I mean, who else monologues with a 2-month old forum post but someone now socially isolated? LOL)

I hope you got to see a specialist, and that they "saw" you. Doctors have an amazing capacity to not even see the very evidence sitting on their paper-lined exam tables... Medical Myopia I call it. Yes, I am jaded. Being a woman, I know the POWER of hormones that are actually regulated and just cycle a bit. To have hormones misfiring willy nilly - the insanity cannot be conveyed. :(

Guess I'll just put these man-hands in my pockets, don the clown-shoes, and take my dog for a little walk.
Gonna check out that doctor list they mention as well, maybe do some google. I don't need a referral to see a specialist in my remaining months of COBRA elligibility. However, the specialists seem to need a referal and labs and doctors notes before they'll bother with new patients. Seems backwards.

March 18..... <whistling through my miraculously-corrected overbite...> (get it? hehe, no underbite but no more overbite..)
3 years 9 months ago #10126

Please Log in or Create an account to join the conversation.

  • JeffJamesDean
  • JeffJamesDean's Avatar Topic Author
  • Offline
  • Fresh Boarder
  • Fresh Boarder
  • Posts 6
  • Thank you received: 0

Replied by JeffJamesDean on topic Losing Cognitive Abilities – Pituitary?

I am going to call you tomorrow, I am getting nowhere fast
4 years 8 hours ago #10115

Please Log in or Create an account to join the conversation.

  • JeffJamesDean
  • JeffJamesDean's Avatar Topic Author
  • Offline
  • Fresh Boarder
  • Fresh Boarder
  • Posts 6
  • Thank you received: 0

Replied by JeffJamesDean on topic Losing Cognitive Abilities – Pituitary?

Thank You so very much!
4 years 3 days ago #10114

Please Log in or Create an account to join the conversation.

  • Posts 83
  • Thank you received: 0

Replied by PNA-Tammy on topic Losing Cognitive Abilities – Pituitary?

Hello JJD,

I read both your posts and I will respond to both here. First and perhaps most important, you are not a nut case. You deserve proper treatment. We will do what we can to help you get it.

I don't know if you have been in our Physicians section of our website, but we do have a list of physicians who have experience treating patients with pituitary disorders. Here is a link to that page: Physicians List .

I am not a doctor, so I cannot answer your questions directly. I have forwarded your information to a couple of our scientific advisors and I will let you know what they say.

In the meantime, look at the list of doctors. Find one in your area and try to get an appointment. If you would like to contact me directly I can be reached at (805) 499-9973 or [email protected] Hang in there. I will be in touch soon.

Take care,
Tammy
Last edit: 4 years 1 week ago by PNA-Tammy.
4 years 1 week ago #10110

Please Log in or Create an account to join the conversation.

Moderators: [email protected]membershipcoordinatoradministration