× Have you had to leave your job or just had problems coping with your regular responsibilities. How has having a pituitary tumor/disorder affected your work?

I can't stand being on Disability!

  • smcmahan
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I can't stand being on Disability! was created by smcmahan

I was diagnosed with having NO pituitary gland (PAN HYPO Pituitarism) at all when I was 13. When 26 years old and fresh out of college, my parents, who adopted me at 10 days old and have been my medical advocates since I was 13, had to hire a lawyer to get me on Medicare and Medicaid. I am thankful for that, but what I hate is that in order to get Medicare/Medicaid, you have to be either retired or on disability. I am disabled without my medicine, but I enjoy working and working hard to earn the money I deserve. I would like to earn more than the maximum limit of 15K/year, but I fear that if I do earn more that I will die at the hands of my own government who wish you to be poor enough in order to "deserve" coverage for something I did not ask for or cause. I do have a trust fund (although tiny).

What I would REALLY like to know is how it is for Canadians who have Pituitary problems and can they earn more since Canada has single-payer insurance? What's it like in the UK?

Thank You!
2 years 10 months ago #10259

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