The marvelous richness of human experience would lose something of rewarding joy if there were no limitations to overcome. The hilltop hour would not be half so wonderful if there were no dark valleys to traverse.
~ Helen Keller
On Friday, October 11, 2019 the Pituitary Network Association was invited to participate in Weill Cornell’s Pituitary Symposium and CME Course at Weill Cornell Medical College in New York. The day was filled with presentations designed to educate neurosurgeons, endocrinologists, neurologists, internists and other health care providers about advances in the evaluation, management and treatment of people with pituitary disorders.
The symposium was very informative, with presentations covering multiple topics given by pituitary specialists from Weill Cornell Medicine and by visiting faculty, including Dr. Susan Samson from Baylor College of Medicine and Dr. Amir Hamrahian from Johns Hopkins School of Medicine. In addition, representatives of pituitary patient organizations spoke as well. Course co-director Dr. Georgiana Dobri kicked things off with a presentation called "An Introduction to the Pituitary Gland and Pituitary Tumors". That was followed by Dr. C. Douglas Phillips discussing imaging of pituitary tumors. Dr. Marc Dinkin gave a presentation entitled "Ophthalmologic Evaluation of Patients with Pituitary Pathology". Dr. Hamrahian discussed the diagnosis of functional pituitary tumors, while Dr. Samson discussed their treatment. Dr. Dobri concluded the morning session with a look at post-op management and follow-up of pituitary tumors.
This month’s PNA Spotlight focuses on Dr. Jeffrey Bruce, a pituitary neurosurgeon in New York. Dr. Bruce is currently the Edgar M. Housepian Professor of Neurological Surgery at Columbia University’s College of Physicians and Surgeons, where he serves as Vice-Chairman, Residency Program Director, Co-Director of the Brain Tumor Center, Program Director for Neuro-oncology in the Cancer Center and Director of the Bartoli Brain Tumor Research Laboratory. Dr. Bruce earned his M.D. from the University of Virginia and received his medical degree from Rutgers-Robert Wood Johnson Medical School. He was a medical staff fellow in the Surgical Neurology Branch of the N.I.H. before completing a neurosurgery residency at the Neurological Institute of New York, Columbia University. The PNA posed a series of questions to Dr. Bruce; his answers follow.
In honor of Pituitary Awareness Month, the Pituitary Network Association took to the streets of Thousand Oaks, CA to raise awareness for pituitary disorders by participating in the Thousand Oaks Rotary Street Fair. With an estimated 19,000 people in attendance, the PNA drew in the crowds by holding a fundraiser, raffling off prizes that were donated by local businesses in the community. We developed a new handout and gave it out, along with other goodies to people as they walked by. People stopped by to ask, "What is a pituitary?". In addition, several pituitary patients shared their stories and thanked us for being there to spread awareness. It was a hot, blustery day and our four-legged friends were able to enjoy a cool drink of water while their owners stopped in to chat. The people who hung around for the drawing waited with anticipation as the tickets were pulled and the winners announced. Winners were overjoyed as they took their prizes home. The PNA wishes to thank all the businesses who donated to our cause to make this day a success, as well all the people who participated in the raffle. It was a truly memorable day!
We have heard many stories about how some of you have named your tumors. Some have even had eviction parties when they are removed. We have often thought about how the pituitary is a character that has such control over our day to day feelings and reactions so we decided to make a cartoon character out of a pituitary gland. We need your help to name it. Submit your ideas to [email protected] so we can name it together.
#PituitaryNetworkAssociation #Pituitary #DYK #DidYouKnow #PituitaryAwareness #NamethatPit #What'sItsName #You Name It
A study co-authored by several members of the PNA (Dr. Theodore Schwartz, Dr. Georgiana Dobri, and Dr. Rohan Ramakrishna) looks at readmissions after endoscopic transsphenoidal pituitary surgery. It found that 4.6% of patients in the 584 cases studied were readmitted, with hypernatremia being the most common cause. J Neurosurg. 2019 Sep 27:1-6. doi: 10.3171/2019.7.JNS191558. [Epub ahead of print]
In honor of Pituitary Awareness Month, we are posting stories graciously shared by patients about their pituitary journey. We hope that all who reads these stories will find them as inspiring as we do.
This story is written by Samriddhi Paliwal from India about her journey with Congenital Panhypopituitarism (CPHP). Samriddhi writes:
An article in Healio looks at a study done on adult-onset craniopharyngiomas in patients in Germany. It found that many patients experience significantly reduced quality of life, even though the tumor is benign. It also concludes that transcranial surgery tends to produce more lasting side-effects, compared to transsphenoidal pituitary surgery. Read more: http://bit.ly/33YeJRv
Knowledge is power and we believe keeping abreast of news on the research front is imperative. Each month in Highlights we feature a few of the top news stories, which you can read below. In addition, we update our website on a regular basis with the latest breaking news related to pituitary and hormonal disorders by gathering stories we think you'll be interested in from MD Linx, Medscape, MedPage Today, PubMed, Touch Endocrinology, News-Medical.net and WebMD.
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Disclaimer: PNA does not engage in the practice of medicine. It is not a medical authority, nor does it claim to have medical expertise. In all cases, PNA recommends that you consult your own physician regarding any course of treatment or medication.
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The Pituitary Patient Resource Guide Sixth Edition is now available! Be one of the first to have the most up-to-date information. The Pituitary Patient Resource Guide a one of a kind publication intended as an invaluable source of information not only for patients but also their families, physicians, and all health care providers. It contains information on symptoms, proper testing, how to get a diagnosis, and the treatment options that are available. It also includes Pituitary Network Association's patient resource listings for expert medical care.