This month the PNA Spotlight focuses on Dr. Steven N. Roper, the surgical director of the University of Florida’s Neuroendocrine Program and Comprehensive Epilepsy Program. He did his undergraduate studies and earned his M.D. at Texas A&M. He moved on to an internship and residency in neurosurgery at UCLA. Dr. Roper was kind enough to answer a series of questions from the PNA. His answers follow.
What inspired you to choose your career path?
I was inspired to be a neurosurgeon early in my medical training because of the ability to make a large impact on patients’ lives with neurological diseases. I enjoyed the intellectual chalIenge of accurately diagnosing people with neurological and endocrine disorders and, in the process, better understanding how the brain works. I also enjoyed the technical challenges of working safely and effectively in a very sensitive area of the body.
PNA Medical Corner: Assessing Confocal Laser Endomicroscopy for Pituitary Surgery
This month the PNA Medical Corner spotlights an article in the Journal of Clinical Medicine, co-authored by PNA members Dr. William White and Andrew Little. Researchers looked at the feasibility of using confocal laser endomicroscopy (CLE) to assess tiny structures in the pituitary during transsphenoidal surgery. The study used cadavers and biopsied pituitary slices. The authors conclude that CLE, using fluorescein to provide contrast, merits future studies.
Evgenii Belykh 1, Brandon Ngo 1, Dara S Farhadi 1, Xiaochun Zhao 1, Michael A Mooney 1, William L White 1, Jessica K Daniels 2, Andrew S Little 1, Jennifer M Eschbacher 2, Mark C Preul 1 Affiliations expand
“Acromegaly is a frustrating disease. And when it comes to breakthrough symptoms, doctors may not know or validate the concerns we have.”
In her job as an asthma educator, Traci spent her time advocating for patients and encouraging them to be proactive and ask the right questions with their doctors. So, when she received her diagnosis of acromegaly, Traci was prepared to be her own advocate in getting the best care and treatment she could; a philosophy she continues to embody 11 years later.
The purpose of the Grace Study is to evaluate the effectiveness (benefits) and safety (side effects) of an investigational study medicine, relacorilant, in treating participants with endogenous Cushing syndrome, also known as hypercortisolism. All eligible participants will receive the investigational study medicine.
A new study highlighted on Cushingsdiseasenews.com finds that muscle weakness can persist for years, even after the patient is in remission. Read more here:
Pituitary Story: Primary Adrenal Insufficiency
An article in the New York Times tells the story of a woman who craved salt, felt nauseous all the time, and had darkening skin even though she hadn’t been out in the sun. It turned out to be primary adrenal insufficiency. Read more here:
Pituitary Tumor Survivor Walks to Raise Funds For Research
The pituitary journey of a 26-year-old patient in the UK is highlighted in an article in miltonkeynes.co.uk. Caroline Watson was first diagnosed at age 13 and has had two surgeries so far. Initially doctors discounted her swollen body and told her to just go on a diet. Now she is helping raise funds for research. Read more: Photo credit: Jack Mizen
10-year-old Pituitary Patient Get Star Wars Welcome Home Parade
A ten-year-old boy from Warminster, Pennsylvania recently had surgery to remove a pituitary tumor. It was made more difficult because of COVID. When he returned from the hospital, the neighbors had a Star Wars motorcade to welcome him home. See the video here:
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Disclaimer: PNA does not engage in the practice of medicine. It is not a medical authority, nor does it claim to have medical expertise. In all cases, PNA recommends that you consult your own physician regarding any course of treatment or medication.
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The Pituitary Patient Resource Guide Sixth Edition is now available! Be one of the first to have the most up-to-date information. The Pituitary Patient Resource Guide a one of a kind publication intended as an invaluable source of information not only for patients but also their families, physicians, and all health care providers. It contains information on symptoms, proper testing, how to get a diagnosis, and the treatment options that are available. It also includes Pituitary Network Association's patient resource listings for expert medical care.