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Patient Story Editorial - Traci

 

traciWith Acromegaly, You Are Your Best Advocate

“Acromegaly is a frustrating disease. And when it comes to breakthrough symptoms, doctors may not know or validate the concerns we have.”

In her job as an asthma educator, Traci spent her time advocating for patients and encouraging them to be proactive and ask the right questions with their doctors. So, when she received her diagnosis of acromegaly, Traci was prepared to be her own advocate in getting the best care and treatment she could; a philosophy she continues to embody 11 years later.

 

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PIT AwarenessMonth

Have you had your hormones checked recently?

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October 2020

 

Muscle Weakness and Cushing's Disease

A new study highlighted on Cushingsdiseasenews.com finds that muscle weakness can persist for years, even after the patient is in remission. Read more here:

Pituitary Story: Primary Adrenal Insufficiency

An article in the New York Times tells the story of a woman who craved salt, felt nauseous all the time, and had darkening skin even though she hadn’t been out in the sun. It turned out to be primary adrenal insufficiency.  Read more here:

Pituitary Tumor Survivor Walks to Raise Funds For Research

caroline watson2The pituitary journey of a 26-year-old patient in the UK is highlighted in an article in miltonkeynes.co.uk. Caroline Watson was first diagnosed at age 13 and has had two surgeries so far. Initially doctors discounted her swollen body and told her to just go on a diet. Now she is helping raise funds for research.  Read more:
Photo credit: Jack Mizen

 

 

10-year-old Pituitary Patient Get Star Wars Welcome Home Parade

A ten-year-old boy from Warminster, Pennsylvania recently had surgery to remove a pituitary tumor. It was made more difficult because of COVID. When he returned from the hospital, the neighbors had a Star Wars motorcade to welcome him home. See the video here:

 

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Oct 2020 Medical Corner

 

PNA Medical Corner: Assessing Confocal Laser Endomicroscopy for Pituitary Surgery

william whiteandrew littleThis month the PNA Medical Corner spotlights an article in the Journal of Clinical Medicine, co-authored by PNA members Dr. William White and Andrew Little. Researchers looked at the feasibility of using confocal laser endomicroscopy (CLE) to assess tiny structures in the pituitary during transsphenoidal surgery. The study used cadavers and biopsied pituitary slices. The authors conclude that CLE, using fluorescein to provide contrast, merits future studies.


Confocal Laser Endomicroscopy Assessment of Pituitary Tumor Microstructure: A Feasibility Study

Evgenii Belykh 1, Brandon Ngo 1, Dara S Farhadi 1, Xiaochun Zhao 1, Michael A Mooney 1, William L White 1, Jessica K Daniels 2, Andrew S Little 1, Jennifer M Eschbacher 2, Mark C Preul 1 Affiliations expand


• PMID: 33003336 DOI: 10.3390/jcm9103146

Abstract

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