Happy New Year from PNA!

Look for the PNA in Times Square tonight!

As 2018 comes to a close, we want to thank you for supporting us as we reflect back on another successful year for the Pituitary Network Association. The last 12 months have been remarkable, and it has been an honor to serve each and every one of you. Below is a list of just some of the programs and services that we’ve provided this year to help pituitary patients and their families gain knowledge about pituitary disorders:

  • Compassionate and knowledgeable staff available via phone or email to help you find answers to your pressing questions
  • Webinars led by expert pituitary physicians
  • e-Highlights, our monthly pituitary e-newsletter filled with the most up-to-date pituitary news
  • Pituitary patient and family Facebook support groups and forums
  • Pituitary.org, our interactive website filled with everything pituitary related, including find-a-doctor and find-a-pituitary center capabilities
  • Public awareness campaigns in Times Square

None of what we do would be possible without our PNA HEROES like you. As you contemplate your end of year giving, please consider giving a tax deductible donation to the PNA. Your past generosity has emboldened us to put together an aggressive agenda for 2019, starting with a Times Square New Year’s Eve public awareness campaign, website renovation, and 2 pituitary patient symposiums that are in the works. Please remember anything you give will help us continue to offer hope and knowledge to pituitary patients and their families.

We will continue to strive to make sure that every pituitary patient, many of whom are suffering, can be diagnosed and begin the journey back to health.

Thank you, and may you all have a blessed New Year!

Text 2GIVE to 44321

 or

donatealpha

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PNA Thanks You!

As 2018 comes to a close, we want to thank you for supporting us as we reflect back on another successful year for the Pituitary Network Association. The last 12 months have been remarkable, and it has been an honor to serve each and every one of you. Below is a list of just some of the programs and services that we’ve provided this year to help pituitary patients and their families gain knowledge about pituitary disorders:

  • Compassionate and knowledgeable staff available via phone or email to help you find answers to your pressing questions
  • Webinars led by expert pituitary physicians
  • e-Highlights, our monthly pituitary e-newsletter filled with the most up-to-date pituitary news
  • Pituitary patient and family Facebook support groups and forums
  • Pituitary.org, our interactive website filled with everything pituitary related, including find-a-doctor and find-a-pituitary center capabilities
  • Public awareness campaigns in Times Square

None of what we do would be possible without our PNA HEROES like you. As you contemplate your end of year giving, please consider giving a tax deductible donation to the PNA. Your past generosity has emboldened us to put together an aggressive agenda for 2019, starting with a Times Square New Year’s Eve public awareness campaign, website renovation, and 2 pituitary patient symposiums that are in the works. Please remember anything you give will help us continue to offer hope and knowledge to pituitary patients and their families.

We will continue to strive to make sure that every pituitary patient, many of whom are suffering, can be diagnosed and begin the journey back to health.

Thank you, and may you all have a blessed New Year!

Text 2GIVE to 44321

 or

donatealpha

Print

Financial and Medical Assistance Organizations

AACE Prescription Savings Directory

The American Association of Clinical Endocrinologists put together a list of Patient Drug Assistance Organizations.

Air Care Alliance

Using their own time and general aviation aircraft, pilot volunteers from the many public benefit flying organizations help hundreds of people each month. They and many other non-flying volunteers work to transport patients in need to facilities where they are able to receive medical attention they might otherwise have to do without.

Air Charity Network

Air Charity Network is comprised of network member organizations who cover specific geographical service areas and coordinate volunteer pilot flights in the continental United States as well as Alaska and Hawaii.

Angel Flight Mid-Atlantic

Angel Flight Mid-Atlantic (AFMA) is a nonprofit 501(c)(3) organization utilizing over 550 volunteer pilots to transport patients to specialized medical care. We are a coordinating service matching volunteer pilots willing to donate their time and aircraft to the individuals in need.

Co-Pay Relief

PAF Co-Pay Relief (CPR) provides direct financial assistance to qualified patients, assisting them with prescription drug co-payments their insurance requires relative to their diagnosis.

Good Days

Good Days exists to improve the health and quality of life of patients with chronic disease, cancer, or other life-altering conditions. At Good Days, our mission is to ensure no one has to choose between getting the medication they need and affording the necessities of everyday living.

Hospitality Homes

Hospitality Homes is a nonprofit organization that provides short-term housing in volunteer host homes for families and friends of patients receiving medical care in the Boston area. Our services are free of charge and are made possible by the generosity of our volunteer hosts and supporters.

National Association of Hospital Hospitality Houses, Inc.

The Healthcare Hospitality Network, Inc. (HHN) is a nationwide professional association of nearly 200 unique, nonprofit organizations that provide lodging and support services to patients, families and their loved ones who are receiving medical treatment far from their home communities.

National Patient Travel Center

The National Patient Travel Center provides information about all forms of charitable, long-distance medically-related transportation and provides referrals to all appropriate sources of help available in the national charitable medical transportation network.

Needy Meds

NeedyMeds is a national non-profit organization that maintains a website of free information on programs that help people who can't afford medications and healthcare costs. More than 1.3 million patients, family members, healthcare professionals, social workers and patient advocates use the NeedyMeds website each year. We regularly update data on over 9,000 assistance programs, 15,000 free/low-cost/sliding scale clinics and nearly 1,500 drug discount coupons. We also publish information about resources for specific diseases. All our information is accessible online, at no charge and without registration.

PAN Foundation

The Patient Access Network Foundation is an independent, national 501 (c)(3) organization dedicated to providing underinsured patients with financial assistance through more than 50 disease-specific funds that provide access to progressive therapies. Since 2004, PAN has provided more than 700,000 underinsured patients with over $2.5 billion dollars in financial assistance to cover out-of-pocket expenses for their prescribed treatments. 

Partnership for Prescription Assistance

Our mission is to increase awareness of patient assistance programs and boost enrollment of eligible individuals. We offer a single point of access to more than 475 public and private programs, including about 200 programs offered by biopharmaceutical companies. We've helped millions of Americans to get prescription drugs for free or at very low cost drugs.

Patient Advocate Foundation

Patient Advocate Foundation is a national non-profit organization that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job discrimination and/or debt crisis matters relative to their diagnosis through case managers, doctors and attorneys. Patient Advocate Foundation seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.

Patient Services Incorporated

PSI is the "ground breaking" 501(c)(3) non-profit, charitable organization of its kind. For nearly two decades, PSI has helped people who live with certain chronic illnesses or conditions locate suitable health insurance coverage and access ways to satisfy expensive co-payments. PSI provides assistance with the cost of health insurance premiums associated with COBRAs, State High Risk Pools, Open enrollment, Guaranteed Issue policies, HIPAA conversion policies; and prescriptions co-payments associated with private insurance as well as with Medicare Parts B and D.

For more information, visit: https://www.patientservicesinc.org/

RX Assist

Patient assistance programs are run by pharmaceutical companies to provide free medications to people who cannot afford to buy their medicine. RxAssist offers a comprehensive database of these patient assistance programs, as well as practical tools, news, and articles so that health care professionals and patients can find the information they need. All in one place.

Southwest Airlines Medical Transportation Grant Program

Through the Southwest Airlines Medical Transportation Grant Program (MTGP) we provide complimentary, roundtrip tickets to nonprofit hospitals and medical transportation organizations. Southwest allows participating nonprofit hospitals and medical transportation nonprofit organizations the freedom to determine how to distribute the tickets to patients and/or caregivers.

State Prescription Assistance Programs

There are a number of prescription drug assistance programs in each state of the U.S. Some of these programs, such as the Extra Help program, are designed to support Medicare beneficiaries, while some other available resources can also support state residents who are not enrolled in Medicare.

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Healthcare Tools and Resources

AdvoConnection

This site provides access to patients advocates, patient navigators, case managers, elder care advocates, home health, medical billing advocates, legal and other forms of patient assistants who may be able to help you or your loved ones manage those many health care challenges.

Centers for Medicare and Medicaid Services

Provides information about government-sponsored healthcare programs.

Home Healthcare Agencies

Home health care companies offer a wide range of skilled medical services such as nursing care, physical therapy and occupational therapy from qualified medical professionals in addition to various services from home health aides.
http://www.homehealthcareagencies.com

Internet Drug Index

National Association of Healthcare Advocacy Consultants

The National Association of Healthcare Advocacy Consultants is the professional organization for healthcare advocates that is dedicated to the improvement of patient outcomes through continuing education, promotion of national standards of practice, and active pursuit of policy change that lead to excellent person-centered healthcare.

National Library of Medicine (NLM)

The National Library of Medicine (NLM), on the campus of the National Institutes of Health in Bethesda, Maryland, is the world's largest medical library. The Library collects materials in all areas of biomedicine and health care, as well as works on biomedical aspects of technology, the humanities, and the physical, life, and social sciences.

The Endocrine Society

The Endocrine Society is the world's largest and most active organization devoted to the research, study and clinical practice of endocrinology.

New England Journal of Medicine Online

The New England Journal of Medicine (NEJM.org) is dedicated to bringing physicians the best research and key information at the intersection of biomedical science and clinical practice, and to presenting the information in an understandable and clinically useful format. A career companion for physicians, NEJM keeps practicing physicians informed on developments that are important to their patients and keeps them connected to both clinical science and the values of being a good physician.

The Journal of Neurosurgery

Publishes an on line peer reviewed journal called NeurosurgicalFocus. The format of this journal is to present a new "Topic" each month that contains numerous peer reviewed articles.

Touch Endocrinology - www.touchendocrinology.com

European Endocrinology & US Endocrinology enables time-pressured physicians to stay abreast of key advances and opinion in diabetes practice in Europe & the US. The FREE-TO-ACCESS content is produced and distributed in print, online, via eBook, via monthly eNewsletter and at major congresses.

The journals comprise balanced and comprehensive articles written by leading authorities addressing the most important and salient developments in the field of diabetes. Guided by an Editorial Board comprising world-renowned experts in their respective sub-specialties, the journals are designed to promote best practice, to lead the debate on health and to engage, inform, and support physicians in improving patient outcomes globally.

Treatment Strategies – Diabetes

Treatment Strategies – Diabetes is a print report and eBook together with a supporting website, bringing influential articles and healthcare professionals together, in order to build a forum to showcase and discuss leading drugs, as well as, technological and therapeutic developments. For further information please visit the Cambridge Research website at http://www.cambridgeresearchcentre.co.uk/all-publications/diabetes/.

The U.S. Dept. of Health and Human Services, Office on Women's Health

A Lifetime of Good Health is a new 67 page online booklet to help women of all ages understand their health needs better. This is a guide to understanding health risks at every age. This also provides an easy-to-read chart outlining medical tests and procedures recommended for women at different stages of their lives.
http://permanent.access.gpo.gov/gpo9191/your-guide-to-staying-healthy.pdf

Water for Life

Of all the things we have ALL been told about good health habits, the one we neglect most often, relates to the drinking a daily supply of clean water!
(In most advanced countries, tapwater is just fine). This link, to a very unusual and straight forward web site, can be a boon to you, and your family's good health. Drink and enjoy. You KNOW it is good for you.

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Available Now!

PPRG6-500 Cover
The Pituitary Patient Resource Guide Sixth Edition is now available! Be one of the first to have the most up-to-date information. The Pituitary Patient Resource Guide a one of a kind publication intended as an invaluable source of information not only for patients but also their families, physicians, and all health care providers. It contains information on symptoms, proper testing, how to get a diagnosis, and the treatment options that are available. It also includes Pituitary Network Association's patient resource listings for expert medical care.

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