In honor of Pituitary Awareness Month, the Pituitary Network Association took to the streets of Thousand Oaks, CA to raise awareness for pituitary disorders by participating in the Thousand Oaks Rotary Street Fair. With an estimated 19,000 people in attendance, the PNA drew in the crowds by holding a fundraiser, raffling off prizes that were donated by local businesses in the community. We developed a new handout and gave it out, along with other goodies to people as they walked by. People stopped by to ask, "What is a pituitary?". In addition, several pituitary patients shared their stories and thanked us for being there to spread awareness. It was a hot, blustery day and our four-legged friends were able to enjoy a cool drink of water while their owners stopped in to chat. The people who hung around for the drawing waited with anticipation as the tickets were pulled and the winners announced. Winners were overjoyed as they took their prizes home. The PNA wishes to thank all the businesses who donated to our cause to make this day a success, as well all the people who participated in the raffle. It was a truly memorable day!
In honor of Pituitary Awareness Month, we are posting stories graciously shared by patients about their pituitary journey. We hope that all who reads these stories will find them as inspiring as we do.
This story is written by Samriddhi Paliwal from India about her journey with Congenital Panhypopituitarism (CPHP). Samriddhi writes:
In honor of Pituitary Awareness Month we are asking patients to Share Stories of their pituitary journey. We will choose a few to share on our website, in our newsletter, and on Facebook and Twitter to raise awareness about the realities of these disorders. Our goal is to inspire and give hope to others through your stories of trials and triumphs. Please email your stories to: firstname.lastname@example.org
In honor of Pituitary Awareness month the PNA is excited to partner with Mediaplanet Publishing on its Endocrine Health Campaign that focuses on Cushing’s Syndrome. Click on the link below to view the article written by PNA contributor, Carol Knudsen, as well as other articles related to Cushing’s.
Cushing's syndrome is a debilitating endocrine disorder characterized by excessive cortisol levels in the blood which may be the result of a tumor of the pituitary gland, adrenal glands (located above the kidneys) or from tumors or cancer arising elsewhere in the body (ectopic ACTH producing tumors). It can also be caused by long-term use of high-dose corticosteroids. Cushing’s disease refers specifically to excessive ACTH secretion by a pituitary tumor (also called pituitary adenoma). The cause of Cushing’s syndrome is a pituitary adenoma in over 70% of adults and in approximately 60-70% of children and adolescents. Most pituitary ACTH-secreting adenomas are small in size (microadenomas). Overall, Cushing’s disease is relatively rare, affecting 10 to 15 of every million people each year, and most commonly affects adults aged 20 to 50 years. Women account for over 70% of cases.