PNA Highlights July 2022

PNA Highlights July 2022

Happiness lies first of all in health.

George William Curtis

PNA Spotlight: Dr. Andre Beer Furlan

This month the PNA Spotlight focuses on Dr. Andre Beer Furlan, a skull base and endovascular neurosurgeon at Moffitt Cancer Center and Assistant Professor of Oncologic Sciences at the University of South Florida. Dr. Beer Furlan got his medical degree and a PhD from the University of São Paulo in Brazil. He stayed at the University of São Paulo to complete a neurosurgery residency. He practiced as a neurosurgeon and skull base surgeon in Sao Paulo and then moved to the United States, where he did a second neurosurgery residency at Rush University. He also did fellowships in skull base micro-neurosurgery at Weill Cornell Medical College, minimally invasive cranial surgery at Ohio State University and neuro-endovascular surgery at Rush University. He is fluent in English, Portuguese, Spanish and Italian. Dr. Beer Furlan was kind enough to answer a series of questions from the PNA; here are his answers.

Medical Corner: Adult Growth Hormone Deficiency

This month the PNA Medical Corner features an article co-authored by multiple members of the PNA, including Drs. Kevin Yuen, Lewis Blevins and Maria Fleseriu. The co-authors have developed an algorithm that combs a database and predicts which people would benefit from further testing to see if they have Adult Growth Hormone Deficiency.

Development of a Novel Algorithm to Identify People with High Likelihood of Adult Growth Hormone Deficiency in a US Healthcare Claims Database

• PMID: 35761982

• DOI: 10.1155/2022/7853786

Abstract
Objective: Adult growth hormone deficiency (AGHD) is an underdiagnosed disease associated with increased morbidity and mortality. Identifying people who may benefit from growth hormone (GH) therapy can be challenging, as many AGHD symptoms resemble those of aging. We developed an algorithm to potentially help providers stratify people by their likelihood of having AGHD.

Magnolia

PATHFNDR

Investigational Studies to Evaluate the Safety and Efficacy of Paltusotine in Patients with Acromegaly
The PATHFNDR studies are recruiting patients to participate in clinical research for once-daily paltusotine for the treatment of acromegaly. If the studies are successful, paltusotine could be approved as a ONCE-DAILY, ORAL treatment option that gives patients an alternative to injections or twice-daily oral medications.

As a study participant, you could play an important role in advancing the options available for acromegaly treatment for yourself and many others living with this rare disease.

ABOUT THE STUDIES

The purpose of the PATHFNDR studies is to see if Crinetics Pharmaceutical’s investigational medication, paltusotine, is safe and effective in patients with acromegaly.

PATHFNDR-1 is a randomized, placebo-controlled study designed to evaluate the safety and efficacy of paltusotine in
subjects with acromegaly treated with somatostatin receptor ligand (SRL) based treatment regimens. Clinicaltrials.gov

PATHFNDR-2 is a randomized, placebo-controlled study designed to evaluate the safety and efficacy of paltusotine in
subjects with non-pharmacologically treated acromegaly. Clinicaltrials.gov

See if you may qualify

1(855) 848-8486

Available Now!

The Pituitary Patient Resource Guide Sixth Edition is now available! Be one of the first to have the most up-to-date information. The Pituitary Patient Resource Guide a one of a kind publication intended as an invaluable source of information not only for patients but also their families, physicians, and all health care providers. It contains information on symptoms, proper testing, how to get a diagnosis, and the treatment options that are available. It also includes Pituitary Network Association’s patient resource listings for expert medical care.

Buy Now

PNA Gratefully Acknowledges our Supporters

Continuing Education Program

If you are a nurse or medical professional, register for PNA CEU Membership and  earn CEU credits to learn about the symptoms, diagnosis and treatment options for patients with pituitary disorders. Help PNA reduce the time it takes for patients to get an accurate diagnosis.

Register Now!

For more information click here!

Coming Events

Dr Garni Barkhoudarian to be awarded Gentle Giant

Helpful Resources

Pituitary Patient Tool Kit

Check out our new educational tools!

Downloadable Pituitary Brochures

Our print quality brochures are now available for download.