News Articles September 2022

 

Mother Fights to Get School Staff Trained on Pituitary Injections

A mother in the U-K is working to get training for staff at her daughter’s school, so they can give her an emergency injection. The girl suffers from panhypopituitarism and may require a hydrocortisone injection in an emergency situation. But the school will not authorize it staff to administer an intramuscular injection without proper training. Liability issues are at the heart of the matter. Now the mother is petitioning the government to step in. Read more:

Signs of a Hormonal Imbalance

An article in Health Digest gives an exhaustive rundown of all the possible signs of a hormonal imbalance, including unusual body odor. Read more:

Cushing’s and Job Stress: A Personal Story

Paris Dancy’s latest column in Cushing’s Disease News follows his career struggles as he battled Cushing’s. Read more:

A Mother Uses Positive Affirmation Chants to Help Daughter with Pituitary Issues

A story on the Upworthy website tells the story of a mother who chants positive affirmation to her young daughter, who is blind and has an underdeveloped pituitary. Read more:

Patient story: Teen Excels in School Despite Pituitary Tumor

A story in the Derbyshire Times follows the case of a teen girl there named Deeti Wren, who underwent surgery for a pituitary brain tumor, and carried on with her studies anyway, managing to take her GSCE’s despite the health troubles. Read more:

FSH, Obesity, and Breast Cancer

Researchers at the University at Buffalo and the University of Arizona are studying the role of Follicle-Stimulating Hormone (FSH) in obesity. Obesity is a risk factor for breast cancer, so they are looking for a through-line from obesity to excess FSH to breast cancer. Read more:

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News Articles August 2022

 

Chinese Cancer Researchers Study Pituitary Hormone Receptors

The Journal Science reports that researchers with the University of Science and Technology of China “have made a breakthrough in the treatment of cancer through immunotherapy, identifying a particular hormone receptor as a potential target for the treatment.” The receptor promotes tumor growth. It is called MC5R and works with the pituitary hormone α-MSH which is produced by the pituitary gland. Read More:

Son Grows Hair, Makes a Wig for Mom with Pituitary Tumor

shahaThe Today Show’s website has the story of a man in Arizona who grew out his hair for two years in order to make a wig for his mother, who suffers from a recurring pituitary tumor. Read more:

Caption: Melanie and Matt Shaha (Courtesy Shaha family.)

Study: Signifor Reduces Tumors in Cushings

An article in Cushing’s Disease News looks at research that found that SignifActor With Acromegaly Passes Away In Los Angelesor reduced tumor size in 40% of Cushing’s patients in the study, but most of them had already had surgery. Read more:

Symptoms of a Brain Tumor

An article in VeryWellHealth lists the common signs of a brain tumor: “vomiting, seizures, balance problems, dizziness, personality changes, loss of consciousness, and more.”
Read more:

Well-Known Egyptian Acromegalic Dies at Age 27

The PNA sends its condolences to the family of Huda Abdel-Gawad, a 27-year-old acromegalic who passed away recently from kidney failure. Abdel-Gawad had come to be known as Egypt’s tallest woman. Read more:

Actor With Acromegaly Passes Away In Los Angeles

irwin keyesCharacter actor Irwin Keyes passed away recently at age 63 from complications of acromegaly. He was known for his roles in “House of 1000 Corpses”, “The Jeffersons” and “Intolerable Cruelty”.

Caption: Actor and acromegalic Irwin Keyes. (Wikimedia Commons)

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News Articles July 2022

 

Patient Story: Shifting Bite Leads to Diagnosis of Acromegaly

A story in the New York Times tells the story of a woman who kept having problems with her bite. The dentist filed her teeth but sent her for and MRI when the jaw shifted again. That’s when a technician saw the tumor on her pituitary. Read more:

The Role of Computer Facial Analysis in Diagnosing Acromegaly

A new study from China looks at the use of computer facial analysis and machine learning to diagnose acromegaly. Researchers found that certain facial characteristics which can be identified with facial analysis (widening of the jaw, an increase of length and breadth of the face, a nose that has widened and moved up) can predict “the morbid state” with high accuracy. They conclude that facial analysis shows promise in the early diagnosis of acromegaly. Read more:

Can Psychosis Be the First Sign of Cushing’s?

An article in Cushing’s Disease News looks at a case study from Saudi Arabia where a woman with psychosis, in the form of auditory hallucinations, delusions and compulsive eating, was eventually diagnosed with Cushing’s Disease. She underwent surgery for a microadenoma and eventually her symptoms eased. Read more:

Patient story: Optician Helps Diagnose a Pituitary Tumor

musgroveA story in the Mirror recounts the pituitary journey of a 21-year-old woman in the U.K. called Ellie Musgrove, who suffered from blurred vision and headaches. Her GP prescribed antibiotics and ibuprofen. When that didn’t help, she saw an optometrist, who noticed swelling, suspected a tumor and referred her to the hospital. By that evening she was in surgery to drain a buildup of fluid caused by a pituitary tumor. She was diagnosed with Addison’s disease. Read more:

Caption: Optometrist Aqeel Mahmood with patient Ellie Musgrove (Courtesy Ellie Musgrove)

 

 

 

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News Articles June 2022

 

Scott Hamilton Bikes 444 miles for Cancer Research

A longtime friend of the PNA, Olympic ice skater Scott Hamilton, recently finished a 444-mile bike ride to raise money for glioblastoma cancer research. Hamilton overcame a pituitary tumor and testicular cancer. The ride started in Natchez, Mississippi and ended in Nashville, Tennessee. Read more:

Dr. Melmed Honored For Career in Pituitary MedicinPatient story: Craniotomy to Remove Tumore

Dr. Shlomo Melmed, a member of the PNA since the beginning, recently became the first-ever recipient of the Transatlantic Alliance Award by the European Society of Endocrinology and the Endocrine Society. The award recognizes Dr. Melmed’s contributions to endocrine research in Europe and the United States.
Read more:

Blurry Vision Leads to Diagnosis of Cushing’s

The journal Cureus published a study out of Philadelphia in which a woman was diagnosed with Cushing’s after seeking help for blurry vision. Read the case abstract here:.

Read a summary from Cushing’s Disease News here:

Patient story: Craniotomy to Remove Tumor

An article in Newsweek looks at the case of a woman with a brain tumor adjacent to the pituitary, who underwent a craniotomy and earned a special nickname from her friends: “borg queen.”  Read more here:

Patient story: Two Tumors

A patient tells her story in Cushing’s Disease News – of trying to maintain a positive attitude while battling one tumor after another. Read more:

 

 

 

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News Articles May 2022

 

Pituitary Journey: Cushing's Disease

Today.com published a feature about a Georgia woman’s fight to for a diagnosis of Cushing’s disease. The article also quotes PNA member Dr. Nelson Oyesiku, who performed her surgery. Read more:

Pituitary Failure and COVID

An endocrinologist from a hospital in Bengalaru, India reports a slew of patients who experienced pituitary failure after recovering from COVID. Read the article in the Deccan Herald:

Wrestler Fights Acromegaly and Cushing’s

omosOmos, a wrestler with WWE, has battled both acromegaly and partial Cushing’s Disease. An article in cagesideseats.com tells his story, and links to a recent TV appearance. Article:   TV Interview:

Caption: Wrestler Jordan Omogbehin, known as Omos (DivaWorld/Wikimedia Commons)

 

5-year-old Colorado Boy Battles Craniopharyngioma

ronan woodAn article in the Pikes Peak Courier tells the story of a courageous 5-year-old boy named Ronan Wood from Colorado Springs, who had surgery to remove a craniopharyngioma. Read more:

Photo: Ronan Wood Go Fund Me

 

File:Jordan Omogbehin (6).jpg - Wikimedia CommonsWrestler Fights Acromegaly and Cushing’s

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